Bourque, Guillaume

Published purpose

The specific objectives of this funding opportunity are to: • Develop a federated pan-Canadian framework that will enable access to and analysis of genomes and associated health/environmental information, governed in a transparent, accountable and consistent way; • Address equity, diversity and inclusion by capturing the Canadian genomic “variome” to truly represent the richness of the genomic diversity of people living in Canada, and in all its diversity by promoting the inclusion of detailed information on key identity characteristics, such as sex, gender, and other intersecting identity factors, that shape the health of all people living in Canada; • Position the framework as a key mechanism to improve effectiveness - both from an economic and health perspective - of healthcare delivery in a learning health system context; • Provide means and opportunities to facilitate clinical trials that are increasingly based on genomic medicine; • Position Canada as a key player in international genomic research endeavours.