Marshall, Deborah A
$1,598,238.00 CAD
- Department
- Canadian Institutes of Health Research
- Program
- Research in Priority Areas
- Recipient country
- Canada
- Fiscal year
- 2024-2025
- Agreement period
- April 1, 2024 – March 31, 2028
- Reference
- cihr-irsc:236-2024-2025-Q1-00261
Published purpose
The specific objectives of this funding opportunity are to: • Demonstrate the feasibility of tracking rare diseases and conducting prospective studies in this field within the Canadian health care systems; • Increase cross-jurisdictional collaboration and data sharing amongst hospitals; • Prospectively assess the impact of mortality, co-morbidities, hospital usage, other health system usage, and total direct cost of rare diseases to the health care system; and, • Facilitate the establishment of patient registries for potential enrollment by a diversity of people in Canada in clinical trials and to enable patient and caregiver peer-to-peer contact.
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