Murias, Kara

Published purpose

The specific objectives of this funding opportunity are to: • Define best practices for delivering clinical genetic and genomic information to patients for the field of inherited diseases holistically along with the associated emotional, psychological, and/or practical support required during and after diagnosis. This may include, but is not limited to: o Ensuring accessibility of information; o Using technology to enable initial and ongoing genetic counselling; o Addressing access to psychological and social services; o Promoting information dissemination throughout patients’ lifetimes; and, o Advancing opportunities to connect with other patients. • Identify capacity building opportunities for AHPs to sustain the increase in genetic testing in clinical settings. • Foster knowledge mobilization to inform timely uptake of new information and maximize impact of the above goals across institutions, disciplines, jurisdictions, and sectors by identifying equitable, effective and sustainable implementation solutions.